FORCE-NEN brings together the Dutch centers of expertise in the field of neuroendocrine neoplasms. Many of these centers have institutional databases and/or biobanks for neuroendocrine neoplasms. Within FORCE-NEN collections we showcase these resources and provide meta-data regarding the individual collections. Hereby visibility of these valuable resources in rare disease is increased and can foster collaborative use of these collections of data- en biospecimen in a rare disease.
Network detailsCatalogueFORCE-NEN collections UMCG
FORCE-NEN collections UMCG
Description
Institutional retrospective longitudinal database (Oncolifes, multiwebstudy)
General Design
- Type
- Cohort study
- Cohort type
- Clinical cohort
- Data collection type
- Retrospective, Prospective
- Design
- Longitudinal
- Start/End data collection
- 1989 until 9999
Population
- Countries
- Netherlands (the)
- Number of participants
- 960
- Population age groups
- Adult (18+ years)
- Population oncology topology
- ESOPHAGUS
- Cervical esophagus
- Thoracic esophagus
- Abdominal esophagus
- Upper third of esophagus
- Middle third of esophagus
- Lower third of esophagus
- Overlapping lesion of esophagus
- Esophagus, NOS
- STOMACH
- Cardia, NOS
- Fundus of stomach
- Body of stomach
- Gastric antrum
- Pylorus
- Lesser curvature of stomach, NOS
- Greater curvature of stomach, NOS
- Overlapping lesion of stomach
- Stomach, NOS
- SMALL INTESTINE
- Duodenum
- Jejunum
- Ileum
- Meckel diverticulum
- Overlapping lesion of small intestine
- Small intestine, NOS
- COLON
- Cecum
- Appendix
- Ascending colon
- Hepatic flexure of colon
- Transverse colon
- Splenic flexure of colon
- Descending colon
- Sigmoid colon
- Overlapping lesion of colon
- Colon, NOS
- RECTUM
- Rectum, NOS
- PANCREAS
- Head of pancreas
- Body of pancreas
- Tail of pancreas
- Pancreatic duct
- Islets of Langerhans
- Other specified parts of pancreas
- Overlapping lesion of pancreas
- Pancreas, NOS
- Population oncology morphology
- Neoplasms
- Malignancy
- Inclusion criteria
- Age group inclusion criterion
- Health status inclusion criterion
- Other inclusion criteria
- >18 years, NEN diagnosis, informed consent
Organisations
Lead organisations
- University Medical Center Groningen (UMCG)Netherlands (the)https://www.umcg.nl
Contributors
- dr. A (Annemiek) WalenkampUniversity Medical Center Groningena.walenkamp@umcg.nl
Principal Investigator
Available Data & Samples
Data categories
Medical records
Areas of information
- Socio-demographic and economic characteristics
- Age/birthdate
- Sex/gender
Collection events
List of collection events defined for this resource
| Name | Description | Participants | Start end year | |
|---|---|---|---|---|
No results for current selection |
Networks
Part of networks
Access conditions
Inform contact person.
- Data access conditions
- health or medical or biomedical research
- disease specific research
- Data use conditions
- collaboration required
- ethics approval required
- institution specific restriction
- Data access fee
- false
- Release type
- Closed dataset